I am Hashimoto's Disease ~ A letter for patients, family and friends
Hi. My name is
Hashimoto's, and I'm an invisible autoimmune chronic illness that attacks your
thyroid gland.
I am now velcroed to you for life.
Others around you
can't see me or hear me, but YOUR body feels me.
I can attack you
anywhere and anyhow I please.
I can cause severe
pain or, if I'm in a good mood, I can just cause you to ache all over.
Remember when you and
energy ran around together and had fun?
I took energy from
you, and gave you exhaustion. Try to have fun now!
I can take good sleep
from you and in its place, give you brain fog and lack of concentration.
I can make you want to
sleep 24/7, and I can also cause insomnia.
I can make you tremble
internally or make you feel cold or hot when everyone else feels normal.
I can also give you
swollen hands and feet, swollen face and eyelids, swollen everything!
Oh, yeah, I can make
you feel very anxious or very depressed, too.
I can make your hair
fall out, become dry and brittle, cause acne, cause dry skin, the sky is the
limit with me!
I can make you gain
weight and no matter what you eat or how much you exercise, I can keep that
weight on you. I can also make you lose weight. I don't discriminate.
Some of my other
autoimmune disease friends often join me, giving you even more to deal with.
If you have something
planned, or are looking forward to a great day, I can take that away from you.
You didn't ask for me. I chose you for various reasons:
That virus or viruses
you had that you never really recovered from, or that car accident, or maybe it
was the years of abuse and trauma (I thrive on stress.) Maybe you have a family
history of me. Whatever the cause, I'm here to stay.
I hear you're going to
see a doctor to try and get rid of me. That makes me laugh! Just try. You
will have to go to many, many doctors until you find one who can help you
effectively.
You will be put on the
wrong thyroid meds for you, pain pills, sleeping pills, energy pills, told you
are suffering from anxiety or depression, given anti-anxiety pills and
antidepressants.
There are so many
other ways I can make you sick and miserable, the list is endless - that high
cholesterol, gall bladder issue, blood pressure issue, blood sugar issue, heart
issue among others? That's probably me.
Can't get pregnant, or
have had a miscarriage?
That's probably me
too.
Teeth and gum
problems? TMJ? I told you the list was endless.
You may be given a
TENs unit, get massaged, told if you just sleep and exercise properly I will go
away.
You'll be told to
think positively, you'll be poked, prodded, and MOST OF ALL, not taken
seriously when you try to explain to the doctor how debilitating I am and how
sick you really feel.
Your family, friends
and co-workers will all listen to you until they just get tired of hearing
about how I make you feel, and just how debilitating I can be.
Some of them will say
things like "Oh, you are just having a bad day" or "Well,
remember, you can't do the things you use to do 20 YEARS ago", not hearing
that you said 20 DAYS ago.
Some will start
talking behind your back, they'll call you a hypochondriac, while you slowly
feel that you are losing your dignity trying to make them understand,
especially when you are in the middle of a conversation with a
"normal" person, and can't remember what you were going to say next.
I've been trying to
keep this next part quiet, but since you're reading this you already know.
The only place you
will get the kind of support and understanding in dealing with me, is with
other people that have me. They are really the only ones who can truly
understand.
I am Hashimoto's
Disease.
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